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"it?s long-awaited recognition that disabled people can be
parents ? and beautiful."
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Monumental Fuss Over A Statue
Marc Quinn?s 15ft statue of a pregnant Alison Lapper, an artist
affected by the drug Thalidomide, has been chosen to stand on the fourth
plinth in Trafalgar Square from next spring until 2006. The great and
good of the art world ? and the not-so-great-or-good of the tabloid
press - are up in arms. She can?t be, because she hasn?t any.
It has by turns been labelled ?Vulgar? and ?Politically
Correct?. It?s neither ? it?s long-awaited recognition
that disabled people can be parents ? and beautiful. How many of
these same critics, I wonder, have gazed in awe at the beauty of the Venus
de Milo, herself portrayed without arms. Or the nakedness of Michaelangelo?s
David who, it could be argued, is somewhat disadvantaged ?south
of the border?.
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Are these people outraged that
we should have a public representation of a disabled person in 2004, and
can they have failed to notice the irony of complaining about it being
situated in a square commemorating perhaps Britain?s foremost symbol
of working round your disability: Lord Nelson?
What?s Up, Doc? Don?t You Want Me To Live?
Leslie Burke is a man on a life-or-death mission ? literally. He
has Cerebellar Ataxia, a degenerative condition. In the High Court, he?s
taken on the monolithic General Medical Council - that bastion of self-protection
for doctors ? over guidelines that allow them to withdraw artificial
feeding and allow patients to die. As it stands, patients or those representing
them can opt to refuse or allow life-ending treatment ? but not
insist on life-prolonging treatment. In 2002, guidelines were introduced
that allow doctors to withdraw artificial feeding without having to bother
with getting a Court Order ? when in 1993 it took a House of Lords
judgement to determine that Tony Bland, a victim of the Hillsborough Tragedy,
could be allowed to die naturally by withdrawing treatment ? the
exact opposite position. Over the years, my views on the subject of the
right to die have changed ? I used to be ?Anti?, but
having followed Diane Pretty?s fight to be allowed to depart with
dignity at the time of her choosing, I now find myself in the ?Pro?
camp. However, that doesn?t stop me being squarely behind Leslie
Burke ? because they both share the same objective ? to have
the legal right to exercise choice. To do as they wish with their lives.
We all know that there are doctors out there - including the late, unlamented
Harold Shipman ? who routinely abuse the oaths they took to ?First,
do no harm? . If this challenge stops doctors in our budget-obsessed
NHS helping to cut costs by committing such acts, then surely we would
all be in favour?
Keep Taking The Tabloids
Most of you regulars are aware that for the last year or so, I?ve
been trying to break into the media as a journalist and screenwriter.
My first break came with being handed this column to amuse, enlighten
and infuriate you, according to your views on my perspective of life.
Phase two is well underway, with the launch of a production company headed
by myself, actress Julie Frenandez and writer and TV presenter Mik Scarlet
? The Wheelie Good Company. I?m pleased to report that after
months of feverish preparation, meetings, and midnight oil burning on
all our parts, we sent out a press release last week, and put up the first
page of our company website last night (15th). However, I?m already
learning that publicity can be a double-edged sword.
Of all the dailies we sent the release to, The Daily Star was the first
- and as far as I know, the only one - to pick it up. I was initially
a bit irked with the vocabulary used in this little box article, complete
with the most unflattering still picture from Julie?s time in The
Office that I?ve ever seen, no doubt dredged up from the bottom
of their picture archive. But what can you expect from those with the
journalistic skills of one of the legendary infinite number of monkeys
sat in front of the infinite number of typewriters? Shakespeare it wasn?t
? but a small success that we can build on is how I prefer to see
it. And besides, as Julie helpfully pointed out to me, at least she got
to be under Justin Timberlake ? even if it was only on the page
of a newspaper! You can tell she?s easily pleased, can?t you!
As you read this, we have many projects to work on ? a good mix
of drama, comedy and documentaries just waiting to be commissioned. Hopefully
there?s something for everybody. We?re also recruiting and
setting up a database of people who?ve either worked in the media,
or have skills we can use. One of our guiding principles is to have an
integrated company, because we?re all aware how difficult it is
- even for skilled disabled people - to get work. I?ll keep you
posted from time to time ? but I?ve no intention of going
all ?Luvvie? on you ? because I still have to pinch
myself every day to convince myself that this is real.
Posted: 19 March, 2004 |