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It's a question often surrounded by taboo, so Mitchell S. Tepper
posed it on web-based disability lists and forums. The responses were
wide-ranging and often reassuring.
First published at www.ican.com.
The question was an attempt to focus on sexy as a
normal part of the disability experience and relationships. It seemed
to me that we were getting to the point where we could not talk about
being sexy without the D word popping up.
Anyone who gets involved with someone who has a disability becomes
suspect and is assumed a devotee. This does an injustice to all parties.
The person attracted to someone with a disability automatically gets
labeled as having a fetish and his or her motives are called into question.
The partner with the disability is assumed unattractive, suggesting
one must be imbalanced to be attracted to us. And the person who is
actually sexually oriented to some aspect of a disability -- whether
it be a brace or a stump or a leg bag -- is automatically assumed to
be deviant in all aspects of his or her sexual relationships.
Sexual relationships and sexual orientations are much more complex
than this.
Just because someone finds something sexy or attractive about a various
aspect of a disability, say a scar for example, doesn't make him or
her a devo or a deviate. I would not characterize my wife as a devo
yet there are things she finds sexy about me related to my disability.
For example, there's an indent in my hip where they took bone out for
an anterior fusion in my neck, and my wife likes to feel it. I also
have a wide scar on my abdomen from some surgery. It's very smooth and
she traces it with her finger. My fingers are contracted and when we
were first courting she used to almost unconsciously stretch them out
and massage them as we talked. Sexy doesn't have to be just physical.
It could be the way you relate. I could go on, but others have their
own perspectives to add to the mix.
As expected when doing research on sexuality and disability, some people
thought the question was provocative, others perverse, and still others,
plain perverted. As I explained to some, the actual question really
just serves as a bridge into discussions around this topic. People will
interpret and react to it from their own perspective. The responses
are important as they add richness to the various dimensions of our
relationships.
Love is blind
Quadlover said he has often wondered about this question and suggested
maybe it is true that love is blind. For many it was. They didn't see
the disability, only the person. L&k says "My babe is 6 months
new to a C5-C6 SCI, incomplete injury. I find her extremely sexy. I
always have and I always will. She is the same person to me, inside
and out, as before her injury. Though she can't walk, we continue to
do things together, spend time, etc., as before. That's what really
counts."
Annonymous notes, "I didn't know the person I love before (the
disability), but I have seen pictures. They are just as sexy to me now
as they are in those pictures ... more so maybe because of the special
person they are inside and out.
And gorgeous -- gorgeous indeed!"
Darlene, who has cerebral palsy, asked her able-bodied partner, who
replied, "Who said I found anything about your disability sexy?
How about you send something in that says I find YOU sexy notwithstanding
your disability."
Scooter said, "The bottom line is women aren't attracted to me
because of my chair, but because of the man sitting in it." Keith
asked his spouse what she found sexy or exciting about his disability
and she simply stated, "The guy that comes with the disability."
"Go figure," he says.
The whole package
Ingrid was inspired to ask her partner, Robert, of 18 years what he
finds sexy about her. He said it was "the whole package,"
particularly her enthusiasm, her sense of fun, her hugs, her body weight
and her body color. She then asked him the opposite question: does he
find anything unsexy about her disability. She thought he might mention
the fact that he has to position her, but all he said was that sometimes
he felt pain during intercourse because her pelvis is tilted as her
hips are inverted due to cerebral palsy. Ingrid guesses that they just
love each other.
Nicko was afraid this might be a very short article as sexy is not
a word she connects with her disability. Her husband thought she was
sexy before her accident, and he still finds her sexy. She thinks it
is despite her disability, not because of it. She writes, "I think
he admires my mind and spirit, because of the way I deal with problems
and keep a big smile on my face. But I think he'd like the old bod'
back as much as I would."
Attitude is everything
Veranda notes, "My partner says what makes me sexy is the way
that I carry myself. I still wear cute and sexy clothes, faithfully
go get my nails done, and every three months I get my hair colored or
touched up with highlights because I believe I have no limits. And he
also says (he likes) the way I still want to have a sexual relationship
even though I'm in a chair. I also have a scar on my leg that he always
rubs and says is sexy. To paraphrase a bit from Forest Gump, I think
sexy is what sexy does."
From Greg, "My spouse likes my availability. I have MS and I get
to stay home a lot. I conserve what energy I do have for spending time
with my lover."
Scars
Many people related to my example of a scar. Maybe as Scooter noted
it is because every scar tells a story about us. Angus has noticed that
when girls rub the scar on the back of his neck their eyes light up.
"Chicks dig scars!" he says.
Guys do too. Chipper wrote that her husband really likes her strong
arms and the scars on her back from all the spine surgery she has had.
"I find that he traces the scars on my back when he is tense and
when he is aroused."
Erica was quite excited about the scar thing also: "Actually a
lot of the guys I dated LOVED this scar I have on my belly right above
my belly button from where they opened me up to check for any internal
bleeding. ... They thought the scar was sexy as hell. ... I used to
be so self conscious about my scars and now I like them."
Muscles
Mishapie shared that her boyfriend with a T4 injury from eight years
ago has the most beautiful arms and shoulders she has ever seen or felt.
"He doesn't understand why I'm so turned on when he flexes his
arm in my hand ... and now I'm comfortable enough to not be self-conscious
when I touch him where he can't feel. ... He's so beautiful to me, all
over."
'It's all bad'
There were a few out there who could see nothing sexy about disability.
One person noted that there were non-disability related things about
him that his wife liked, but there were no physical, mental or emotional
traits brought on by his disability that she likes (or that he liked,
for that matter). "It's all bad," he said.
While we cannot do much to change the physical, I have to believe there
is hope to improve the mental and emotional outlook. Our choice of our
outlook on life is one thing that is within our control, and sexy is
in the eye of the beholder.
For those who have questioned how anyone can find them attractive with
a disability, here is your answer! Partners do find us -- including
things about our disability -- sexy! Disabled does not equal unattractive
and disability has the potential to bring out some admirable qualities.
Sometimes we don't believe it when our own partner says we are still
sexy because we may feel so different from people without disabilities
or from ourselves, in the case of an acquired disability. I think it
is affirming for everyone to hear partners' perspectives.
Mitchell Tepper, Ph.D, M.P.H., is founder and president of The Sexual
Health Network and SexualHealth.com.
He writes regularly for New Mobility's sexuality column, Love Bites.
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