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Jane Campbell is a pro. She meets me in the office of her home, not the
living room, and shes fully alert for her third interview of the
day.
Maybe it is this ability to stay focussed that scooped her the post of
chair of the new Social Care Institute of Excel-lence (SCIE), a multi-million
pound body set up by the Government to promote good practice, like the
National Institute for Clinical Excellence (NICE).
Her job will be to supervise new ways of providing social care to service
users.
Jane, who has spinal muscular atrophy, applied for the SCIE job expecting
to be turned down. "I thought they arent going to give
me the job. Lets face it, Im a bit of a crippy
crip. I have 24-hour assistance, a ventilator and access needs,
so thats a challenge for non-disabled people."
It is not the only way in which she is challenging. In the past, Jane
was usually in opposition to the government as she campaigned with the
British Council of Disabled People (BCODP) for disabled peoples
rights. She says she had to prove that was not her intention in applying
for the post at SCIE.
The government worries are understandable although she was awarded
an MBE for her work in the Queens birthday honours last year.
She helped secure direct payments for disabled people to buy their own
care, as well as being a founder member and co-director of the National
Centre for Independent Living (NCIL).
And she is not one to mince her words. When asked about her education,
she says her special school was "crap".
But she got a degree in history and politics at university, followed
by an MA in political feminism.
"Then I thought why am I doing all this about womens
emancipation when I should be doing it about my own?"
Janes campaigning began in the early 1980s, and her work on behalf
of disabled people has earned her an enviable reputation in the disability
world. She is widely admired.
"Its a loss to the disability movement," says Peter Mansell,
former chief executive of RADAR where Jane once worked. "But the
more influence disabled people have on different bodies the better, and
Jane will have a real impact."
Long-time friend Sheila Blair, acting chair of BCODP, says: "Jane
is one of the leading lights of the disability movement but she has never
forgotten about the fight. She is still very much a campaigner."
Yet some people accuse her of putting her career before disability rights.
Disability consultant Simon Stevens feels that: "She has become
a fat cat.
"Jane is using a position to get what she wants," he says.
"She doesnt represent disabled people anymore."
Jane retaliates: "Isnt this what we fought for? To be listened
to, to participate and have a share of the power? Its no good shooting
me now I have managed to worm my way in.
"To critics who say Im joining the establishment my retort
is Im not joining it, the establishment is coming to me. There are
many ways to get things done, and this is my approach."
Jane will remain as a Disability Rights Commis-sioner, though she is
leaving NCIL: "They can call on me at any time. Im not breaking
ties."
She feels the SCIE job is a natural progression: "I do like new
things," she says. "I like to go in, set something up and move
on, and thats a pattern in my life. I get incredibly inspired by
creating."
This need to create spills over into her personal life, too. Shes
a keen gardener and has designed her immaculate, fully accessible Tolworth
home. She makes time to go out regularly to the cinema, theatre and concerts
with husband Roger. She seems unstoppable.
Jane claims SCIE is her last "project" and then she will retire.
But Id be willing to bet that, still only 41, she wont be
able to resist getting involved with something else.
Posted: 30 August, 2001
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