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Defecting
A while ago, I announced my intentions to pursue a career in acting and
whilst I haven’t made much headway in that direction, there is something
I can tell you about that keeps my floundering dream slightly buoyant
and demonstrates that I haven’t come to a complete dead-end.
A couple of months ago a few of us thespians with disabilities (including
my mates Lisa Hammond and Mat Fraser) got together to write and perform
a bunch of frankly bizarre yet distinctly humorous sketches which were
filmed for “Ouch!”*;“the BBC’s new website that
reflects life as a disabled person.”
If I didn’t have a computer from the Dark Ages or if perhaps I
knew anything at all about computers, I’d have been able to log
onto the site, check out my comedy prowess and give you a little review.
However, I’m not technologically inclined (something I blame squarely
on my mum who finds the remote control a challenge), so haven’t
been able to work out what I need to download to view the clips.
I can tell you that we all found ourselves and each other hilarious comic
geniuses at the time and were barely able to get the filming done we were
so hysterical with laughter. I’m certain you won’t have seen
anything like it before; it’s crazy stuff.
The “Ouch!” blurb says the website is “not here as
a resource centre or a help shop; it’s more about life, living,
creativity, community, humour and the wider view. There are many fantastic
websites that offer huge banks of information and we didn’t want
to duplicate. However access and rights are very important to us and are
at the heart of what we do.”
And now for something completely different; I’m trying to “get
better”.
I’ve embarked on a project which will get me out of the wheelchair
and into the ranks of the able-bodied. Yes, I’m planning to defect.
In this column, I’ll tell you how it all started and then offer
my progress report as I go along.
In September, my mum and I were featured in The Times newspaper’s
Relative Values section. The article focused on my disability history
and why and how it had all happened and I was quoted as saying I believed
I would recover (which is true.) Then I received a letter from someone
called “The Mind Instructor” saying he may be able to help
me. As I had been having healing from a healer in Thailand who predicted
I would get better, I figured I didn’t need any more help so I ignored
the letter but kept it.
On 1st February, I was feeling a bit down and I found the letter. I thought
I may as well speak to the guy and find out what he does, so I called
“The Mind Instructor” A.K.A Hratch Ogali** and he came to
see me that afternoon. I immediately felt at ease with what he told me.
To put it simply, he believes I have literally paralysed myself with my
emotions and if I learn to deal with emotional stress in a different way
and I no longer internalise negative, destructive feelings, I will start
to get my movement back and ultimately, I’ll be able to walk.
This will sound totally weird to many of you but it makes perfect sense
to me. I have been brought up homoeopathically and with the belief that
you have to look at the whole make-up of a person and their environment
in order to treat physical problems effectively; this is the basis of
all “holistic” and “alternative” medicine.
Hratch said he would work with me and introduce me to various “mind
instructions” (literally instructing your mind what you want it
to do) and other techniques on a spiritual, mental and physical level
to help eliminate patterns and habits that I have unwittingly created,
subconsciously, and have been disempowering me; these are behaviours that
I adopted in my formative years. Obviously, it’s not something that
happens overnight; I have to really work hard for this transformation
to take place but I believe I will master myself, free my body from my
disability and get out of this wheelchair for good.
To make such radical changes to my personality and my physical body
takes a huge amount of energy and concentration. Hratch observed, and
I was aware, that I tended to lose myself in other people’s problems
to the extent where it would deplete me. If any of my friends, family
or even acquaintances had any sort of problem, I was in there trying to
help, trying to please and trying to be important but I was neglecting
my own needs so I decided not to see or speak to anyone for six months.
It was a huge adjustment at first but after a few days, I just felt relieved
that I had permission to release the self-imposed burden of other people’s
worries and dramas. Without spending half my life on the phone or socialising,
I was now forced to focus on my situation and my feelings and I started
to write a diary about my recovery process.
I realise this is highly inflammatory information I’m sharing
with you here; a disabled person trying to get better, looking for a cure,
not willing to accept their disability. I can only be honest about my
disability. I am not prepared to pretend I enjoy being disabled or that
I feel it is part of me because I don’t. I feel trapped, resentful
and angry about my disability and I hate being dependent on other people;
I have to recover and I will do whatever it takes to get there, there’s
no other choice for me. I have started to improve already and in my next
column, I will tell you more.
One to watch
My talented and beautiful friend, Alice Martineau, who you may have seen
in the press recently because she’s a singer/songwriter who has
Cystic Fibrosis and is waiting for a heart, lung, liver transplant, is
being featured in Channel 4’s “Natural Born Talent”;
six short films about disabled artists. The first one goes out on Monday
July 15th at 19:55, Alice’s film will be on Tues 16th at 19:55,
the others are on Wed 17th at 19:55 and 00:00 and Thurs 18th at 19:55
and 00:05. On Fri 19th at 19:30, a compilation of all six films will be
shown. One more thing
I went to the Mobility Road show at Donnington as part of my promotion
work for Ford (who have loaned me a Galaxy for a year) and got given a
copy of a video made by Ford and The Queen Elizabeth’s Foundation
Mobility Centre called “In, Out and All About; Getting Mobile”.
It demonstrates the easiest ways to get in and out of a vehicle, how to
load a chair and shows the latest adaptations and tips for safer driving.
To get hold of a copy, (it’s free to borrow), contact your local
Ford Motability Accredited dealership. You can call MAGIC on freephone
0800 240 241 to find where your nearest dealership is located.
* Ouch! Can be found at www.bbc.co.uk/ouch.
Click on The Lab for the comedy sketches page. Enjoy!
** For more information about Hratch Ogali and his work, email info@mindinstructor.com.
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