DLA Type1 diabetes?

[Diva1987]

Hi, I am 25 years old and would like to find out about a few things regarding DLA. I have been receiving DLA for 6 years and my control has been somewhat erratic to say the least. I do not have warning signs of hypos anymore which puts me in a very dangerous situation should my blood sugars drop. I currectly live with parents and from the age of diagnosis I have had constant visits from paramedics to bring me round after a hypo coma. If my mum or dad wasnt there I dread to think what would have happened, brain damage? death?. I was recently diagnosed with bost mild neuropathy in my feet and background retinopathy in both eyes, not severe enough for laser but still shown some signs of damage. I was diagnosed with brittle diabetes 2 years ago which means I struggle to keep blood sugars within normal limits and obviously with no warning signs was awarded high rate care and low rat mobility. Mobility being as I am unable to drive with my ilness and even a short walk to a bus stop could prove too dangerous for my blood sugars. My mum or dad currently drive me to hospital and doctors appintments. I have never got over the fact that I have diabetes and no matter how much I try to control it things still go wrong, I was diagnosed as a manic depressive 4 years ago and if I didnt hav people pushing me to get up or get ready to be honest I would never go out the house. I do not go out at all anymore because to be honest all I end up doing is thinking why have I got all these health problems while other people can get on with there life. I know people may think pull yourself together but just the fact that I will have this desiese till I die is depressing enough without knowing my complications will only get worse. If a severe hypo does ccur during the night it puts me at risk of another hypo the following day which is one of the reasons why I had a lot of time off work, my hpos at work where too dangerous andnwas told as I was working with machinary they wanted me to leave, so now I have lost my part time wage too. My dla ends in september and I am so worried about the changes they have made like the new pip benefit. I understand everyone will have to have a medical now, is this correct? Obviously I can only walk short distances and my disabilty is some what hidden in regards to hypos, high blood sugars, depression, retinopathy and never damage. If my disabilty is hidden what will happen? The people who do the medical will not be witnessing the hourly checks through the night or the constant help I need from my parents so what will a medical do? I can walk but only short distances to prevent hypos which can come on very suddenly. Any help would be great and please do not judge, you do not have to live my life. Thank you

[Stepheninleeds]

It is not your disability, but how & what you can & cannot do. Medical reports, evidence on conditions, etc, always help any claim. We all have this fear of PIP now, but we can only do our best, know we are being honest, know what our issues & abilities are, what our limits are, what is impossible for us to do, & why. You can prove what is wrong with you & why, you have a strong case, & if the worse happens you have the means to fight back. No one can say if you will be affected by any changes, or if you would lose DLA in September, but do not assume you will. Be realistic of course, but when you know yourself & you know you can prove something to be true, accept that as fact, & go forward with that. Proving what you say is vital, proving your limits is vital, proving what you cannot do is vital, it is all vital. Someone such as the CAB can help with any claims, they can say in afew words what it takes us a large paragraph to say, they know what needs to be said & why, & what we need to leave out.

[davewhit]

you might depnding on the evidance have a chance of getting some rate of dla care IMO you would not get mobility

get in quick because when PIP comes in what you have posted about needing help with watching your health its worth 1 point


pip new regs...........b. Needs supervision, prompting or assistance to manage medication or monitor a health condition

[d3vious]

Hi, I am 25 years old and would like to find out about a few things regarding DLA. I have been receiving DLA for 6 years and my control has been somewhat erratic to say the least. I do not have warning signs of hypos anymore which puts me in a very dangerous situation should my blood sugars drop. I currectly live with parents and from the age of diagnosis I have had constant visits from paramedics to bring me round after a hypo coma. If my mum or dad wasnt there I dread to think what would have happened, brain damage? death?. I was recently diagnosed with bost mild neuropathy in my feet and background retinopathy in both eyes, not severe enough for laser but still shown some signs of damage. I was diagnosed with brittle diabetes 2 years ago which means I struggle to keep blood sugars within normal limits and obviously with no warning signs was awarded high rate care and low rat mobility. Mobility being as I am unable to drive with my ilness and even a short walk to a bus stop could prove too dangerous for my blood sugars. My mum or dad currently drive me to hospital and doctors appintments. I have never got over the fact that I have diabetes and no matter how much I try to control it things still go wrong, I was diagnosed as a manic depressive 4 years ago and if I didnt hav people pushing me to get up or get ready to be honest I would never go out the house. I do not go out at all anymore because to be honest all I end up doing is thinking why have I got all these health problems while other people can get on with there life. I know people may think pull yourself together but just the fact that I will have this desiese till I die is depressing enough without knowing my complications will only get worse. If a severe hypo does ccur during the night it puts me at risk of another hypo the following day which is one of the reasons why I had a lot of time off work, my hpos at work where too dangerous andnwas told as I was working with machinary they wanted me to leave, so now I have lost my part time wage too. My dla ends in september and I am so worried about the changes they have made like the new pip benefit. I understand everyone will have to have a medical now, is this correct? Obviously I can only walk short distances and my disabilty is some what hidden in regards to hypos, high blood sugars, depression, retinopathy and never damage. If my disabilty is hidden what will happen? The people who do the medical will not be witnessing the hourly checks through the night or the constant help I need from my parents so what will a medical do? I can walk but only short distances to prevent hypos which can come on very suddenly. Any help would be great and please do not judge, you do not have to live my life. Thank you

i am in the same position,
my specialist says i am hypo unaware, extremely sensitive to insulin, i don't have a thyroid gland any more due to the auto-immune shenanigans

hypo on a daily basis about 3-4 times,

i dont go out either, it feels like it is too much hassle tbh.

have worked in the past but loading myself with high blood sugers to do so, doesn't help the lifespan really,

absolutely refuse to run high blood sugers/die earlier anymore, just to fit in.

I'm concerned about the things the coalition are introducing.....

[Stepheninleeds]

Tell me you at least get out in the garden on a sunny day.