i am having a long battle with my council regarding an adaptation. my daughter is autistic and hypermobile. she has frequent meltdowns and is an erratic sleeper, i also have a baby who shares her room, upon advice from my daughters gp she should not share a room with a sibling. my council sent out an OT to assess the situation, she said my daughter needs her own room as she is a danger to her sister, she also needs her own room so we can install a safety space padded box where my daughter would go during a meltdown. currently there is not enough space. the problem started with the OT saying because of funding she would prefer to give my daughter medical points so we can move to a bigger property.
I applied for medical points and was turned down on the basis that she will always be autistic and having an extra bedroom would not improve her condition. They argue that because dd1 was here first that the extra bedroom would be for dd2, they awarded me points for this but nothing for medical. this is despite letters of support from my gp, own OT and paediatrician explaining her complex medical needs. I have some points but not enough to move. i have appealed and got support from my mp but they still say no.
When contacting the council again regarding the DFG i was told that it is still an issue due to overcrowding and nothing they can do about it. they wont build an extra room just for her medical equipment and the medical issues regarding sharing with her sister are for the housing points scheme to sort out, nothing to do with their department.
should i just give up now? i dont know what to do? clearly my 2 girls cant share but they wont award enough points to move even though they admit its unsafe for them to share a room. the dfg wont help me because they say the housing should be giving me extra points to move to a more suitable house.
thanks for any help