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Thread: adult a.d.h.d & autistic spectrum pip success rate x

  1. #1
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    adult a.d.h.d & autistic spectrum pip success rate x

    Hi everyone,
    I know I have posted up on here about my 21yr old son and his pip form but there is one thing we really need to know.
    What is the success rate of a adult with a.d.h.d and autistic spectrum disorder ?
    From what I have been reading the success rate is very low even though he is moving over from d.l.a to pip.
    I have told him we may have to appeal and that hasn't gone down too well.
    So has any other adults have these problems and what was your outcome ?
    Many thanks x

  2. #2
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    The person I live with has Autistic Spectrum Disorder and a few other disorders .He is in supported living with a personal budget and his social worker filled in the forms and he still had to go to appeal.

  3. #3
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    Hi.

    Last year I went through the appeal and it is very draining. I went from 0 points, to 12 points. The main thing is getting some good evidence to show them, which includes doctors notes and appeals and also what you write personally. It took me 7-8 months from start to end.

  4. #4
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    Thank you for your comments.

    Runnah - I sent with his form

    letter from Adult Mental Health saying how his conditions effect him and how he relies heavily on others especially when going out
    letter from Adult Mental Health about his first visit with them transitioning from CAMHS.
    letter with pathway and diagnosis of Autistic Spectrum from CAMHS
    All above letters state his diagnosis of ADHD, Autistic Spectrum Disorder and Anxiety.
    I also sent a letter from his tutor and how he needs support etc..in college amd how they see his changes daily.
    I also sent a prescription list of his two medications he takes. One in the morning and one as a top-up in the afternoon.
    I also sent a letter from myself as his carer and as his mother.
    My daughter also wrote a letter on how his conditions are and how they effect her.

    Many thanks x

  5. #5
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    Hi - Don't take this too harsh, but I see some of the information that you have provided as irrelevant to his case, I fell into the same hole when I sent in lots of irrelevant information. After going though the initial applicaton, then MR and getting the same decision, things changed at the appeal and I believe that to be a few sentences from the doctor.

    I had diagnosis letters, letters from parents, letters from other proffesionals and so on, but it didn't make a difference at the application too.

    I believe you need to focus on what is said in specific questions on the application and more about the quality of reply, rather than quantity. Be typical to answering the questions too.

    Communication - "I struggle with communication and feel anxious when speaking to others and would need to be prompted to speak to others. I would often become flustered when speaking to others"

    Travelling - "I feel very anxious when travelling and need support from others. I can not take public transport on my own and would become upset at travelling alone. I often rely on others to travel"

    Basically, I feel you need to focus on what he says, not what you say. A doctors letter just with a few sentences (mine was like 15 words & signature) outling the problems and correctly answering the questions with buzzwords or is clear there are problems will become evident at the appeal. It took a lot of time for me to finally get it right, but I am glad I did.

  6. #6
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    Hi Runnah,
    thanks for your reply.
    I had to fill the form in for him but wrote it as though it was him doing it (i did write in there though that i had completed it for him) as he didn't understand it and I am also his appointee.
    I did put about not being able to travel out on his own especially on public transport and that he has to get a taxi to and from college.
    I did put in about him not preparing a meal or cooking a meal and that he has tried a few times and walked off whilst the cooker was on.
    I also said about not being able to communicate with others as he struggles starting and maintaining conversation and that he also loses concentration when a conversation is taking place. I also put that he can't read people's emotions and how to deal with it.
    He also has trouble understanding the written word. He can read words but struggles in understanding what they are all meaning when they are in a sentence. That's where I am hoping that the college letter will support him as they say in it that he needs a visual helper for reading.
    I am also hoping that one of the other letters supports him not going out. I said on the form and they have put it in the letter that he relies heavily on others.

    many thanks x

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