I have just asked for my DLA to be looked at again after 18 years with low care due to Industrial Injury to my hands. I was awarded on main meal test. In addition I now have Carpel Tunnel along with a host of other medical problems including being insulin dependant and having out of control blood sugar around 25 which makes me feel awful almost of the time including drowsy and sick. I am under Eating Disorder and Psycology unt and have needed a fair bit of help from my family and claimed a review begining of May 2012. I worked as Benefits Advisor for DWP 1999-2009 so know the rules and how to claim and was sure as my condition has deteriorated I would not loose my current award.
Imagine my surprise when decision is my condition has IMPROVED and as I have been a Carer for my disabled daughter and Husband for three and a half years I cannot have had a problem as stated either now or in 1994 and they want back pay for those years I have had Carers Allowance and have suggested I am exaggerating my current problems and have attempted to " up" my own DLA so someone can claim Carers Allowance for me, possibly my husband. The same Decision Maker had removed my husbands High Rate Mob and Middle Rate Care on review and we had sent photos of us on holiday with my husband on a scooter as he could not walk, we thought it may help his reconsideration but instead they have used these against me to say if I can go on holiday including a flight I can not have been disabled as I had one disabled child and another child to care for (who is 11 by the way)
So it appears even when you are worse you have improved and don't dare take a holiday. I cried for three days more out of anger I think, I was only ever awarded on main meal test yet cannot be a Carer which I most definately am. They have also mentioned that if I am caring the said child cannot be that disabled. My poor daughter was born Spina Bifida,Hydrocephalus,double incontinence, deformity of legs and feet, no sensation in lower legs feet. Her bladder leaks but doesn't empty so I catherter every 2-3 hours, I have no freedom beyond these 2-3 hours and have not had a break since 2003, I get no help with her care. I am happy to be her carer but sickened at the suggestion I am a liar.
I am quite fearful they may try to take her high Rate Care and Mob. I do not know how I would manage without her adapted vehicle. I know they have to make cut backs but this is ridiculous.