I have just received a decision after my DLA 12 month review. I was getting the lower rate for mobility, & the higher rate for care, but the decision after the review is that I will now lose the mobilty component altogether, & only receive the lower rate for care. My circumctances have not changed for the better over the past 12 months, if anything they have worsened. I suffer from a rare form of epilepsy which is predominantly worse during sleep, although I do have daytime seizures, focal hand seizures & also nerve damage in my lower back. My review form was almost identically filled in as my form 12 months earlier. There reasons I know this are as follows, -
1 - I have a disability, I am not an idiot.
2 - I anticipated this may happen one day after hearing all the horror stories about other peoples experiences with DLA so I photocopied my original form from 12 months earlier to refer to if I ever needed to fill one in again!
So how can this be??? It is obvious to me that it is not my claim for DLA that needs to be reviewed, but the way the decision maker goes about doing the job they are payed to do. Some of the reasons they gave me in the letter I received ranged from the rediculous to the sublime. One example is that they stated that I, "Was not likely to have a fit at night" I have a rare for of epilepsy & am more susceptible when I sleep for Gods sake!!! Which I must must of referred to atleast 6 times on the form. Another example is "Does not require care for 20 minutes or more each night" which I do, &, yet again, referred to on numerous occasions.
It seems as if the decision maker didn't even read the form they had infront of them. I have telephoned the DLA today, given them a reason for every single point in question that I disagree with, & have asked for a different decision maker to review the form. I am also going to provide them with a letter from my GP, neurologist & local housing association, (as one point made was that I did not require any special aids at home when I have a shower seat & specially adapted wet room as I cannot use a bath living alone with epilepsy.)
I am also going to telephone the DLA again tommorrow &, in the politest of possible ways, demand to see one of their doctors. It is not the money that motivates me, it is the principle of the matter. I intend on taking the fight to them, & I also intend on winning it. Does anyone have any advice or sugestions for me as I move forward with my crusade?! Thankyou for reading this.