D.L.A. what to do next?? help needed!!

[vwkamper]

Hi,

I have been fighting the dla system since june 2011,
My disabilities are Fibromyalgia 18 points, i have no sense of hot or cold i run hot and sweaty all the time, i have no seratonin so my pain thresh-hold is thru' the roof. I have depression, agrophobia, and pain that never stops i can go on...

I was also diagnosed with osteoarthritis is my lower lumbar.

I was awarded lrc 6th January 2012. So i appealed and as time went by my symptoms have worsened i became a recluse
my depression escalated and i was having panic attacks.

So my husband went to my tribunal and they said i should've tried to get there, any way he explained my dilema,
and on the 14th May they changed there desicion to lrm as well as lrc. They also told my husband to put in a change of circumstance form because my dependency and care i need from other's has totally changed.

So i did on the 14th May 2012. So i waited the 11 weeks they told me to and when i phoned them they said my claim
stands as it is and that they sent me a letter on the 7th june (which ofcourse i didn't receive) so she said they
will send me another but it could take 2 more weeks.

Well any idea's anyone i'm open to surgestions!!!

lexy.

[davewhit]

Hi,

I have been fighting the dla system since june 2011,
My disabilities are Fibromyalgia 18 points, i have no sense of hot or cold i run hot and sweaty all the time, i have no seratonin so my pain thresh-hold is thru' the roof. I have depression, agrophobia, and pain that never stops i can go on...

I was also diagnosed with osteoarthritis is my lower lumbar.

I was awarded lrc 6th January 2012. So i appealed and as time went by my symptoms have worsened i became a recluse
my depression escalated and i was having panic attacks.

So my husband went to my tribunal and they said i should've tried to get there, any way he explained my dilema,
and on the 14th May they changed there desicion to lrm as well as lrc. They also told my husband to put in a change of circumstance form because my dependency and care i need from other's has totally changed.

So i did on the 14th May 2012. So i waited the 11 weeks they told me to and when i phoned them they said my claim
stands as it is and that they sent me a letter on the 7th june (which ofcourse i didn't receive) so she said they
will send me another but it could take 2 more weeks.

Well any idea's anyone i'm open to surgestions!!!

lexy.

there is no point score for DLA so did you get 18 points for ESA ?

you could now appeal the latests suppersession where they did not change your award ?

you say you have no seratonin have you supplied DLA with test results from the hospital that came to this conculsion ?

the other thing is the appeal had to look at you postion at the time you applied having got worse would not have been taken into account

[wobble1]

In reality you won your appeal as you were awarded LRM, so I'm guessing what you want is a higher award, but for what, care,mobility or both?
All you can do is make another application based on a change in your condition and give the supporting evidence to them.

[vwkamper]

Hi davewhit,
Thanks for your reply, the 18 points is the maximum diagnosis for fibromyalgia it's to do with pain pressure in your body.
Seratonin is also a condition of fibromyalgia it is a fluid missing from the base of the brain which tells your body levels of pain
because i have none i have pain everywhere and it's over the top. Fibro is to do with the muscles,tendons and any skin on the
body.
I won my appeal on both my conditions.
I now have bundles of more information from scan's mri's change of doctor medical diagnosis with prognosis for my future.
Specialist letter's from my orthopaedic surgeon.
The list goes on...
lexy.

[vwkamper]

Hi wobble1,

Yes you are correct i did win my appeal, but it was the appeal judge that told my husband i should put in the change of
circumstances, because of my new information and changes.
Which i did and i am after hrm and mrc as that is what stage i have become.
They said no change and are keeping it as it is.
It's as tho they haven't even looked at my new case!
lexy.

[davewhit]

Hi davewhit,
Thanks for your reply, the 18 points is the maximum diagnosis for fibromyalgia it's to do with pain pressure in your body.
Seratonin is also a condition of fibromyalgia it is a fluid missing from the base of the brain which tells your body levels of pain
because i have none i have pain everywhere and it's over the top. Fibro is to do with the muscles,tendons and any skin on the
body.
I won my appeal on both my conditions.
I now have bundles of more information from scan's mri's change of doctor medical diagnosis with prognosis for my future.
Specialist letter's from my orthopaedic surgeon.
The list goes on...
lexy.

there is no where in any DWP manual or downloadable regulations a max point for any health problem each person is different, you dont get any points for being ill you get them for what you can and cant do. if you have been told that its wrong.

especialy when you have a health problem regardless of what your drs say some drs working for nhs and atos says is not a health problem

I asked about sertonia as its in 2 places in the body serotonin is primarily found in the gastrointestinal (GI) tract, platelets, and in the central nervous system (CNS) of animals including humans. It is popularly thought to be a contributor to feelings of well-being

its not found at the base of the brain but all over it....

read chp 64 to start

http://www.dwp.gov.uk/publications/s...s-guide/#vol10

change your plan of attack get expert advice to fill in paper work

try and write dla form or esa without mentioning whats wrong more than that you need and focus on whats important how you cant do things and the help you need good luck

[vwkamper]

Hi davewhit,

Thanks for your input you were very helpfull,

lexy

[wobble1]

especialy when you have a health problem regardless of what your drs say some drs working for nhs and atos says is not a health problem

My understanding is that Fibromyalgia had been recognised as an official illness by the BMC some tears ago and any medical practitioner not accepting it could be reported.
Of course this doesn't stop the attitude of some that prevailed before this. i.e. when ME was called yuppy flu and all in the mind.

Lexy,
I'm not sure if you sent ALL the medical evidence when you re-applied for DLA ( on judges advice), if not you should have and if you did and you feel the decision was unfair then are you going to appeal this latest decision?

[davewhit]

My understanding is that Fibromyalgia had been recognised as an official illness by the BMC some tears ago and any medical practitioner not accepting it could be reported.
Of course this doesn't stop the attitude of some that prevailed before this. i.e. when ME was called yuppy flu and all in the mind.

Lexy,
I'm not sure if you sent ALL the medical evidence when you re-applied for DLA ( on judges advice), if not you should have and if you did and you feel the decision was unfair then are you going to appeal this latest decision?

bmc ? I think you mean gmc and thats to do with quality of drs and legal registration

the problem with FIB is it has an absence of objective diagnostic tests no blood test x ray mri ct scan its all down to the dr feeling your joints and how you answer ........... many old school drs will never except such as the way to say someone is sick

of course if you see a dr for a mental health problem this too often lacks " objective diagnostic tests" yet based on the views of a couple of drs they can lock you up for life ....... and everyones happy

drs cant be reported for not agreeing to give a diagnosis of FIB you get a new dr

[wobble1]

bmc ? I think you mean gmc and thats to do with quality of drs and legal registration

the problem with FIB is it has an absence of objective diagnostic tests no blood test x ray mri ct scan its all down to the dr feeling your joints and how you answer ........... many old school drs will never except such as the way to say someone is sick

of course if you see a dr for a mental health problem this too often lacks " objective diagnostic tests" yet based on the views of a couple of drs they can lock you up for life ....... and everyones happy

drs cant be reported for not agreeing to give a diagnosis of FIB you get a new dr

I know someone whose only medical condition is Fibro and they get ESA support group, DLA,hrc and hrm.
I'm not saying Drs must agree to diagnose but Drs are not allowed to say that the illness doesn't exist, as they used too.