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  1. Thanks everyone. I have Fibromyalgia plus Elhers...

    Thanks everyone. I have Fibromyalgia plus Elhers Danlos. Pain has always been put down to a combination of these conditions. They are now looking at a biomechanical reason for the pain, with braces...
  2. Thanks so much for your replies. So I should be...

    Thanks so much for your replies. So I should be ok if I wait to see if this improvement can be sustained over a 3 month period AND I can reasonably expect the improvement to continue for at least 9...
  3. How long to wait before informing DWP of change in health

    Please forgive me for being super paranoid and optimistic at the same time.

    I claim PIP and currently out of work so also claim ESA. I use a wheelchair when I have to but will walk when I can. For...
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    Good point. Video footage should be made...

    Good point. Video footage should be made available under a subject access request.

    I posted this info as my previous PIP assessment (I’ve had 3 now) was scored down because I held car keys. This...
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    At PIP assessment today...

    Thought I would share what I noticed.

    As each assessor went to Reception to collect the form for their next person, the receptionist pointed to the person on a screen showing the CCTV of the...
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    Thanks very much for this! From the web link I...

    Thanks very much for this! From the web link I found an advert for wheelchair accessible taxis. We will be going as a group but can get a standard hire car and a taxi now. Thanks so much!
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    Taking my powerchair on holiday - how??

    I want to rent a villa somewhere like Spain Portugal or Malta. I can't seem to find rental vehicles with a hoist for the chair.

    If I buy a portable ramp, I can take that through the airport...
  8. I don't have any dealings with the ESA call...

    I don't have any dealings with the ESA call centre myself, but just wanted to comment on call centres in general.

    I've been a call centre manager for a long time and most people I employ are...
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    I became disabled shortly after my son was born,...

    I became disabled shortly after my son was born, was unable to use the pram I bought as couldn't lift it in or out of the car, fit the seat on the frame etc. I used a sling for getting out and about....
  10. I've just bumped my car and using motorbility for...

    I've just bumped my car and using motorbility for the first time. Really impressed with their attention to detail. Taxis have been offered as well as getting me a courtesy car with a hoist for my...
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    Oh no! I'm booked to travel with my powerchair in...

    Oh no! I'm booked to travel with my powerchair in 3 weeks. I don't even know how to take the baterry off! They better bloody leave the chair as they find it!!
  12. Agree with Martin, this is not a BB issue it's an...

    Agree with Martin, this is not a BB issue it's an employment issue. Get your union (or get in a union) to help negotiate this for you. I firmly believe, based on experience, that every working...
  13. Sorry no real advice. The only mod I have made is...

    Sorry no real advice. The only mod I have made is to add a cup holder! I totally understand the riser option, I also have an Invacare -mirage. How much is it to add? Just out of interest... <whistles>
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    Thanks. I have been prescribed Omeprizole now and...

    Thanks. I have been prescribed Omeprizole now and have had the gastro resistant Naproxen all this time.

    Mz - thankfully I have an electric wheelchair! No way I can self propel! My shoulders would...
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    Thanks Mz. I'm waiting for the Pain Clinic as...

    Thanks Mz. I'm waiting for the Pain Clinic as was under them but got lost in the system. I ve been re referred now. I've tried quite a few different things, including coming off Naproxen before....
  16. Thread: ESA decision?

    by Kaff79
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    Ok it doesn't say I have been placed in to a...

    Ok it doesn't say I have been placed in to a group or that a decision has been made. So I am still waiting then.

    Thanks a lot
  17. Thread: ESA decision?

    by Kaff79
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    ESA decision?

    I applied for contributions based ESA from 1 Dec 16 and am waiting for a medical. I've returned my ESA50 form, I have multiple medical conditions but have been working up until Dec last year. I was...
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    Naproxen - what can I do?

    I'll try to keep this brief. I take the max dose of Naproxen each day along with max dose pregabalin, paracetamol/codeine 500/30 2x tabs 4 times a day, fentanyl patch 12.5mcg and oramorph as and when...
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    Thanks Freda. I walk around the house to try and...

    Thanks Freda. I walk around the house to try and maintain muscle tone and mobility. I have EDS and my shoulders/hips/knees/fingers all dislocate. I don't have the upper body strength to self propel...
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    People reading their phones and not looking where...

    People reading their phones and not looking where they are going - are not welcome to sit on my lap. It is reserved for cats and small children only.

    Or walking backwards from the cash point -...
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    Thanks everyone. I had to fight really hard to...

    Thanks everyone. I had to fight really hard to get the wheelchair and suddenly thought I had done myself out of PIP in the process!
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    PIP -Stupid question

    I have PIP lower care and enhanced mobility. I started using an electric wheelchair provided by the NHS in August. When my PIP is due for renewal, what impact does this have?

    I still walk, but...
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    ESA - don't know what I'm doing

    Hi all

    I became disabled 5 years ago and continued to work. I've lost 4 jobs in that time, all similar themes. I don't get support to do the job, then fail to meet expectations. I formalise to...
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    Losing my job - what to claim?

    Hi all

    I hope you can help. I'm loosing my job right now, and expect to get a redundancy payment. I've been discriminated against and my solicitor is currently negotiating a settlement that will...
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    Hi Teddie Thanks so much for your reply. I'm...

    Hi Teddie

    Thanks so much for your reply. I'm trying to pick myself up and get on with it. Doesn't help that I'm losing my job right now, through no fault of my own and plenty of someone else's. I...
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