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  1. Sorry no real advice. The only mod I have made is...

    Sorry no real advice. The only mod I have made is to add a cup holder! I totally understand the riser option, I also have an Invacare -mirage. How much is it to add? Just out of interest... <whistles>
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    Thanks. I have been prescribed Omeprizole now and...

    Thanks. I have been prescribed Omeprizole now and have had the gastro resistant Naproxen all this time.

    Mz - thankfully I have an electric wheelchair! No way I can self propel! My shoulders would...
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    Thanks Mz. I'm waiting for the Pain Clinic as...

    Thanks Mz. I'm waiting for the Pain Clinic as was under them but got lost in the system. I ve been re referred now. I've tried quite a few different things, including coming off Naproxen before....
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    Naproxen - what can I do?

    I'll try to keep this brief. I take the max dose of Naproxen each day along with max dose pregabalin, paracetamol/codeine 500/30 2x tabs 4 times a day, fentanyl patch 12.5mcg and oramorph as and when...
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    People reading their phones and not looking where...

    People reading their phones and not looking where they are going - are not welcome to sit on my lap. It is reserved for cats and small children only.

    Or walking backwards from the cash point -...
  6. Thread: Post missing?

    by Kaff79
    Replies
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    13,600

    Ok so I understand what may have been happening...

    Ok so I understand what may have been happening last weekend. But why don't mods reply? Or send an email to me? 0ost a statement from DLF? Just to keep us informed. It's frustrating.

    I was in...
  7. Thread: Post missing?

    by Kaff79
    Replies
    25
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    13,600

    Post missing?

    I created a thread on Friday but it doesn't seem to have appeared?

    Can you look into this please?

    Thanks
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    TalkTalk are coming out with some great offers...

    TalkTalk are coming out with some great offers for fibre broadband and have invested a lot of money in improving its repair and faults service of late. Their focus has been to retain existing...
  9. I'm sorry I don't have any advice, I just wanted...

    I'm sorry I don't have any advice, I just wanted to say that we are not here to judge you. That is what the British justice system is for. You have come onto this site for guidance, advice and maybe...
  10. I would say e for all of them except on cost. I...

    I would say e for all of them except on cost. I will invest, but it needs to be good value and not just tech for the sake of it.
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    I've just started using a wheelchair outside and...

    I've just started using a wheelchair outside and saw someone I work with. He said "oh my, what happened to your legs?" I'm still waiting for my employer to make the building accessible for me to use...
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    I got a mortgage nearly 2 yrs ago with...

    I got a mortgage nearly 2 yrs ago with Nationwide. They would not accept my PIP award at the time as contributing to my income. It was an award for 4 yrs and they would only accept 5 yrs or more....
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    I bought a tumble dryer in 2001 and it's still...

    I bought a tumble dryer in 2001 and it's still working perfectly. I know the energy rating will be shocking but I don't tend to replace things unless they are broken.
  14. Thread: Proof of pain

    by Kaff79
    Replies
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    7,021

    Proof of pain

    Proof of pain - how strange? I have EDS Hypermobility and fibromyalgia. Unseen conditions where no one else can see or measure the pain I'm in.

    I've ruptured a ligament in my foot, and have a...
  15. Thanks CTCELT88. I have unfortunately come to...

    Thanks CTCELT88. I have unfortunately come to expect discrimination at work now. Just because something is illegal, doesn't stop a lot of people thinking it and a few doing it. Just like racism, only...
  16. Thanks everyone for your advice. I'm sorry others...

    Thanks everyone for your advice. I'm sorry others have experienced similar, and I feel a bit better about just stopping that route. It felt childish to just dismiss it, but now looks like the right...
  17. Thanks very much for your advice. It does look...

    Thanks very much for your advice. It does look likely that I will need wheels to get me around at work in the mean time. I will try access to work too, although my employer will be told to pay for...
  18. Adaptations grant- criteria + powered wheelchair disaster

    Hi all

    I have had an OT round today to assess for a powered wheelchair and adaptations for a downstairs loo.

    I'm really upset as to how it's gone and was wondering if anyone had any advice?
    ...
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    My biggest problem is not being able to cook tea....

    My biggest problem is not being able to cook tea. I'm in too much pain and mentally tired to do it. Microwave meal isn't good enough, their are 3 of us to feed. I'd like to have a way of overcoming...
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    Hi Beau Thanks for your reply. I tried them and...

    Hi Beau
    Thanks for your reply. I tried them and they only hire manual ones out due to insurance.
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    Manchester based peeps

    Can anyone recommend where I can hire a powered wheelchair or scooter from? I just need it for 1 day.

    many thanks
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    ???? it's such a shame that HMS/EDS is relatively...

    ???? it's such a shame that HMS/EDS is relatively unknown but many women experience the same thing, all triggered by pregnancy. I had symptoms all my life but nothing debilitating until after I gave...
  23. Thread: Disabled loos.

    by Kaff79
    Replies
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    9,167

    Oh Fliss - now we moved on to the abuse of...

    Oh Fliss - now we moved on to the abuse of disabled parking instead of disabled loos!! ???? Ready, steady, go...
  24. ???? agree we seem to be living the same...

    ???? agree we seem to be living the same challenges. Yes EDS/HMS and FM since having my son 4 yrs ago. We seem to both read posts in wrong order!!
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    Hey how did you get on? I think the secret is...

    Hey how did you get on? I think the secret is that there is no right or wrong way to do this. Everyone will have a different way of approaching a challenge and if you get some advice that works,...
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