Page 1 of 2 12 LastLast
Results 1 to 10 of 13

Thread: PIP Assessment with a Variable Condition

  1. #1

    PIP Assessment with a Variable Condition

    I have very severe chronic migraines and hemiplegic migraines. I am in agonising pain the majority of the time. However, when I am not in pain, which admittedly is very rare, I am completely fine. I am unable to go out and my life is severely impacted by the face that I can become blind, partially paralysed, and in so much pain I want to kill myself, at literally any moment.

    I am worried that in my ATOS assessment, if I am not in pain or am in a relatively small amount of pain, this won't represent the conditions I have fully. They'll think "well she looks perfectly normal, she can converse fluently, walk normally, etc, etc, and so she doesn't fulfil the criteria for the living or mobility component". I have medical records spanning years but from what I've read on here I might as well bring in my shopping list for all the good it appears to do.

    Does anyone have any advice regarding a variable condition and representing it fully in an assessment? I have completed a 7 day diary and sent it in with the rest of my application. Shall I take in notes/another diary?

  2. #2
    Hiya I have common variable immune deficiency which effects the whole immune system and creates other problems with lungs etc, when I went for my pip assessment she asked me to do a few physical things like putting my hands behind my back, putting my leg behind the chair etc
    I didn't score enough points to be awarded anything but I asked for a reconsideration with the help of a friend who helped me write the right things and I got awarded mobility and nothing for care.
    So just take your hospital diagnosis letters and they should make their decision based on them if your disability is variable. Good luck

  3. #3
    Quote Originally Posted by donnaclarke View Post
    Hiya I have common variable immune deficiency which effects the whole immune system and creates other problems with lungs etc, when I went for my pip assessment she asked me to do a few physical things like putting my hands behind my back, putting my leg behind the chair etc
    I didn't score enough points to be awarded anything but I asked for a reconsideration with the help of a friend who helped me write the right things and I got awarded mobility and nothing for care.
    So just take your hospital diagnosis letters and they should make their decision based on them if your disability is variable. Good luck
    Thank you for your response, exactly what I feared. Really worrying because I have £2.66 in my bank account and no way of getting an income as I'm unable to work. I can't wait to attend a tribunal

  4. #4
    variable conditions will be judged over a 12 month period, so you would need to show how your conditions effect you and for more than 50% of that time.

  5. #5
    The criteria for chronic migraines itself is that I have it more than 50% of the time. Unfortunately it's more like 90% :/ But if I'm fine on the day, will that count against me? Am I allowed to take in extensive notes?

  6. #6
    Your diary should be describing in detail exactly what happens to your body - the loss of vision/your paralysis/the pain - and how it affects your ability to do tasks as set out in the descriptors. If at all possible a written account of how someone helps you during this time would help. A diary of 7 days may not be sufficient as your condition fluctuates so perhaps keep a diary for longer to show the frequency of your migraines.

    Do your letters from medical professionals set out what happens when you have a migraine or just gives it a label?
    If you have a good relationship with your doctor then would they write a letter describing how they affect you and their frequency? Would your doctor say that despite medication the symptoms still occur?

    Are you receiving all the financial help that you are entitled to? Do you claim ESA for example? HB and CT support? Put your details into the benefit calculator on www.entitledto.co.uk to check.

    I have great sympathy for your condition as I was also a sufferer, although from your description not so bad as you. I also became totally numb down one side of my face and then 'blacked out'.

    Fortunately as I became older their occurrence became less frequent and now do not suffer at all. Other members of my extended family also suffer so is 'familiar'.

  7. #7
    Quote Originally Posted by pmlindyloo View Post
    Your diary should be describing in detail exactly what happens to your body - the loss of vision/your paralysis/the pain - and how it affects your ability to do tasks as set out in the descriptors. If at all possible a written account of how someone helps you during this time would help. A diary of 7 days may not be sufficient as your condition fluctuates so perhaps keep a diary for longer to show the frequency of your migraines.

    Do your letters from medical professionals set out what happens when you have a migraine or just gives it a label?
    If you have a good relationship with your doctor then would they write a letter describing how they affect you and their frequency? Would your doctor say that despite medication the symptoms still occur?

    Are you receiving all the financial help that you are entitled to? Do you claim ESA for example? HB and CT support? Put your details into the benefit calculator on www.entitledto.co.uk to check.

    I have great sympathy for your condition as I was also a sufferer, although from your description not so bad as you. I also became totally numb down one side of my face and then 'blacked out'.

    Fortunately as I became older their occurrence became less frequent and now do not suffer at all. Other members of my extended family also suffer so is 'familiar'.
    I will definitely write up a thorough report on my condition to take with me to the assessment. I did a short 7 day one with the PIP form but I'll put in a lot more detail.

    The letters just state what my diagnosis is. I have a neurology appointment next week for the first time in a while so I could explain literally every single thing to him/her (new neurologist) and ask them to send me a copy asap and hope it arrives in time for my assessment. It's well documented in my file that no medication has helped.

    I can apply for ESA on the 5th July, but I don't know how I'm going to pay £400 of bills at the end of June! Even then, the ESA wouldn't fully cover my outgoings. I don't qualify for housing benefit, I rent where I live from family so that can't help me unfortunately. I'm not sure what CT is? Is it something to do with kids? I will never be able to have children because of my health condition.

    Thank you for your sympathy. I'm worried that the assessor will be one of those awful people who just think they're headaches. I really hope mine decrease the order I get. For the last few years they have just been getting worse and worse.

  8. #8
    CT is council tax support.

    Do you have a tenancy agreement? Did you apply for housing benefit? HB can be received where you rent from family but it must be set up as a proper commercial agreement.

    It may be worthwhile considering moving elsewhere and renting from a private landlord so that you can get HB and CT support.

    Why can't you claim ESa until July? Are you currently receiving Statutory Sick Pay and it runs out then?

    As regards your bills then ring your creditors and explain the situation and ask for a month's grace. Cancel any DDs (stops overdraft fees) and ask about any refunds if you are in credit with gas/electricity/water to be paid to you.

  9. #9
    Quote Originally Posted by pmlindyloo View Post
    CT is council tax support.

    Do you have a tenancy agreement? Did you apply for housing benefit? HB can be received where you rent from family but it must be set up as a proper commercial agreement.

    It may be worthwhile considering moving elsewhere and renting from a private landlord so that you can get HB and CT support.

    Why can't you claim ESa until July? Are you currently receiving Statutory Sick Pay and it runs out then?

    As regards your bills then ring your creditors and explain the situation and ask for a month's grace. Cancel any DDs (stops overdraft fees) and ask about any refunds if you are in credit with gas/electricity/water to be paid to you.

    No, there is no tenancy agreement. The house is being sold in September and we may be able to buy a house if we move to Wales/borrow the money for the deposit from my family.

    I can't claim ESA until July because I am currently attending university. The 5th is my official finish date so I will start my claim from then.

    I could potentially ask for that but even if I am awarded ESA it wouldn't cover it. Bit stuck at the moment

  10. #10
    Senior Member
    Join Date
    Oct 2013
    Location
    West Midlands (see interests)
    Posts
    155
    Just a note of caution.

    I have a variable condition 20% better times, 60% rough times and 20% very rough times, I made the mistake of telling them this! In my application and f2f and tribunal although I concentrated on the majority of time the 20% better times where taken as the norm. I couldn't get passed this no matter what I tried? After having been awarded std mobility and then stripped of it at tribunal I am now awaiting my second f2f on Thursday but this time I have omitted the better times! The system makes this happen as well as policy but work on the premis that they expect you to exaggerate this is why they extrapolate. Don't blame them in the entirety blame the people who lie!

Similar Threads

  1. Applewood Respite Centre Provides Safer Bathing Thanks To Unique Variable-Height Bath
    By AbacusSpecialistBathroomSolutions in forum Suppliers' news
    Replies: 0
    Last Post: 06-02-2015, 11:34 AM
  2. Update on condition
    By mikeydt1 in forum Health - help & advice on health issues for disabled people
    Replies: 3
    Last Post: 01-29-2014, 08:17 AM
  3. condition changed
    By treamber in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 3
    Last Post: 10-30-2013, 12:08 PM
  4. DLA and change in condition
    By hips in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 22
    Last Post: 09-23-2013, 09:49 PM
  5. effect of pension lump sum on contribution based ESA; also variable permitted work
    By Foxy13 in forum Benefits - help & advice on disability benefits, incapacity benefits, ESA and DLA
    Replies: 4
    Last Post: 11-02-2012, 09:12 AM

Tags for this Thread

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •