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Thread: How long to wait before informing DWP of change in health

  1. #1
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    How long to wait before informing DWP of change in health

    Please forgive me for being super paranoid and optimistic at the same time.

    I claim PIP and currently out of work so also claim ESA. I use a wheelchair when I have to but will walk when I can. For my condition, building and maintaining muscle tone helps to improve pain levels and prevent injury.

    I’ve not been working for 6 weeks now and have found myself able to walk further than normal, I think mostly down to not being exhausted from work. My GP rotates it’s Drs and I saw a knew one this week who examined me and said blah blah blah, completely different diagnosis for what is causing my pain. This is brand new, and she has referred me to a specialist for confirmation. I’ve got a support brace for this condition and it seems to be helping.

    I get the higher level of PIP mobility, I’m so scared I will be reported for benefit fraud. I’m walking around 300 meters in one go, am completely knackered but I can do it. How long should I give this to see if it is the correct diagnosis and that once I’m working again, I’m still able to sustain this distance?

    Many thanks everyone

  2. #2
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    If you expect to be working again soon I would hold on until you're back at work and can see whether the improvement lasts or not.

  3. #3
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    There is no easy answer. You are required to report any change in circumstance as soon as reasonably possible. It is not the diagnosis that matters but the expectation that your improvement will continue. Normally a condition cannot be taken into consideration until it has been in place for three months and expected to continue for a further nine months
    Anything expressed is my opinion only and is offered in good faith. It is either from my own experiance or what I have learned on my journey. Take it for what it is or leave it alone. With best wishes D.

  4. #4
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    Thanks so much for your replies. So I should be ok if I wait to see if this improvement can be sustained over a 3 month period AND I can reasonably expect the improvement to continue for at least 9 months.

    I think I get it, I’m just super paranoid. One of my neighbours has seen me walking a few times now and I just feel really scared about being accused of cheating the system or that I’m faking it, I want to do the right thing.

  5. #5
    From my understanding even if your neighbour was to make a complaint, however substantiated it might be, I think they would call you in for a compliance meeting first and tell you about the complaint and interview you under caution before doing anything about it anyway.

    If it were me I would ring the dwp and advice them on my circumstances and that I'm by no means better, but there might be an improvement soon and my circumstances might change and I will inform them in due course.

  6. #6
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    If you walk 300 m and then you're knackered, well thats not sustainable is it? Don't worry about other peoples perceptions, i always say, they don't see you on a bad day. I mean, does the amount you can walk depend on whether its level ground, uneven ground? Icy or rainy conditions? Low light or at night? Thats what i always say.

    It sounds awfully like MS, which I have, but fatigue is very real and I'd struggle to walk round my house if zonked . i walk in my house and in the garden, but I use a wheelchair outside. walking anywhere else? Nope.

  7. #7
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    As reddivine said if walking that far exhausts you then you can't do it repeatedly which is the criteria for pip so I wouldn't bother contacting them.

  8. #8
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    Thanks everyone. I have Fibromyalgia plus Elhers Danlos. Pain has always been put down to a combination of these conditions. They are now looking at a biomechanical reason for the pain, with braces and potential surgery if diagnosis is correct. I will still have Fibromyalgia and EDS but if the main source of my pain can actually be relieved, it’s a game changer for me. I live in hope!

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