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Thread: pip refused

  1. #1

    pip refused

    Hi i have diverticulitis. Ibs and am incontinent but got refused for pip.
    The pip doctor gave me only two points for my incontinence pads.
    my own doctors and the consultant I haven't a clue what information they sent the pip doctor.
    I have changed doctors three times in the last year and half but get nowhere.
    I recently had a interview at the jobcentre which was embarrassing because I had to go through my illnesses she stated that it would be virtually impossible for me to get employment because I'm incontinent between 3 and 9 times a day and need help cleaning myself up etc.
    I have put in for a reconsideration but not holding my breath as she was snotty and very blunt and obviously didn't believe a word I said.
    I have a letter off my incontinence nurse but that's not good enough it seems.
    I'm scared about court if I appeal because this is the second time I'm appealing if I get refused the reconsideration.
    I have been the cab but they are too busy so can't help me.
    I have results of my biopsies and have celiac disease but can't get the right gluten free food because it's too expensive.
    Iv lost two stone in ten months? But they seem to think because I was over weight in the first place the consultant hasn't even mentioned it but I get weighed each time I'm there.
    I have seen 4 different Consultants in the last year at the same hospital and I get fobbed off each time.
    They do not listen to me I even tried taking a overdose but my daughter found me in time because no one believes how I'll I am .
    any advice or help would be appreciated.
    Teresa x

  2. #2
    I dont think you would get PIP for being incontinant i suggest you explain what other issues you face with your disabilities so someone could advise you further on what to do.

  3. #3
    Hi Teresa68,

    I can't advise you because I'm only just going through my very first claim. However, welcome to the forum. I'm sure someone will reply shortly who will be able to advise and guide you.

  4. #4
    To be awarded PIP you need to score 8 points for the standard rate or 12 points for the enhanced rate so you won't qualify on incontinence alone. If they've given you just 2 points for that, it would seem that they have awarded the points on the basis of needing an aid or appliance (pads). They don't seem to have awarded the higher level of six points for needing assistance, i.e. for help cleaning yourself up - did you explain why you need help cleaning yourself? The condition you have doesn't in itself make the actual act of cleaning yourself difficult so you need to explain to them what causes this to be something you cannot do alone and need help with.You would not be able to qualify for PIP on incontinence alone though as if you can show that you do need "assistance" you would still only score 6 points which isn't enough to be awarded PIP. If you have disabilities which make cleaning yourself difficult, then these probably also affect your ability to do some of the other tasks on the PIP questionnaire so you should look at those too.

    Regarding the gluten free diet needed for Coeliac Disease - foods are available on prescription for this if it has been diagnosed by the NHS so see your Doctor and ask for a prescription. Also, your GP should be able to refer you to a dietician who can give you guidance on which foods to avoid and so improve your symptoms.

  5. #5
    @ teresa68

    At a tribunal some years ago, was advised it was up to me to provide my medical evidence even if I gave them my GP and Consultant's details. I lost that case.

    Reapplied with my supporting evidence i.e. consultant letters, gp evidence etc... and was awarded DLA (in those days) received Care and Mobility components.

    Being a coeliac on its own will not be considered. My mother is a coeliac with cancer growing in and round her duodenum, has had stents put in to open up the section. Can only eat pureed gluten free food. She also has another stent from her liver to the gall bladder. She doesn't qualify for this section of a claim i.e. care as she can still eat - though it's baby food. To clarify - it took four years for her to referred to an oncologist (Cancer Specialist). That was because Marie Curie stepped in and did the referral - NOT the GP. My mother is now due to have surgery next week (5/6 hour operation to cut this all out). When she comes out she will have to take enzymes as most of her stomach, duodenum, spleen and pancreas are being removed. Still won't qualify as she'll be using enzymes to digest the food.

    From what you've said "I have a letter off my incontinence nurse". Was this the only letter provided? Not a gp, consultant etc? Don't presume they contacted your GP or consultants, did you provide letters from them to support your claim?

    Hopefully someone will come along and provide further information to help you.

  6. #6
    Quote Originally Posted by teresa68 View Post
    The pip doctor gave me only two points for my incontinence pads.
    As noisynoodle has said, two points for "needs to use an aid or appliance to be able to manage toilet needs or incontinence" is the correct score for the "managing toilet needs" PIP activity unless you need assistance from another person cleaning yourself up and getting changed.

    It's not that you are not being believed - the PIP Daily Living component is primarily about help you need from another person, not your symptoms or the aids you use.

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